Dystonia Diary

This is what it's like to have cervical dystonia - the good, the bad, and the ugly. Actually, there's nothing good about it.

Saturday, May 15, 2010

It just keeps getting worse

My Dr asked for approval for more Botox, so we're just waiting or the "OK". I can't believe how bad my dystonia is now. It gets a little worse after each treatment. My neck is really twisted up now. At least I shouldn't have to wait too long for my next treatment. I'm going to ask my Dr to do inject most of it on the left side (my head turns to the right, among other things), because (apparently) that's the way it should be done.

The pain can be bad at times, but it doesn't last long. Since I usually work just 4 hours a day, it's just mildly annoying. All I need to do is stretch my neck for a few seconds, and I'm good to go - for a while. :)

I really should do more stretching and posture exercises, but there are times when I just get sick and tired of exercising several times a day. At least I do some exercises twice a day every day. I need to do more, though. I also need to do more research into what other people with cervical dystonia are doing. There's bound to be someone who found something useful. Since the only way I can get online now is by going to Starbucks for their free WiFi (2 hours with a food or drink purchase), I can't get online as often as I need to. Oh well. I'll post after my next treatment, if not sooner.