Strange new problem
*I posted this on Dec 21 elsewhere*
I've always put on coats with my right arm first. About a month ago, I noticed an occasional problem with finding my left sleeve to put my arm in it. I never gave it much thought. For all I know, it could have been happening for a couple of months, but since it happened so rarely, I hardly noticed it.
A few days ago, I really noticed that I have that problem most of the time. I now have a lot of trouble getting my left arm into a coat sleeve more often than before. Since my Cervical Dystonia causes my head to rurn right, pull forward, and tilt up - and cause my left shoulder to hunch up - I'm wondering if my "sleeve problem" is Dystonia related. I'll ask my Dr at my next follow-up in mid January.
That's all I need - another Dystonia compication! At first, my head just turned to the right. Now it turns, pulls and tilts, and my shoulder hunches. Sheesh! The fun never ends.
As I like to say, Cervical Dystonia may be a pain in the neck, but at least it isn't boring.
posted by I go by many names... @ 12:52 AM
7 Comments:
I have an 11 year history of cervical dystonia. Luckily I finally found out what I had from a newspaper article about a nun that had it. Then what type of subspecialist to go to, and the best Neurologist in his specialty in the world. Dr. George Paulson at Ohio State University.
Before you resort to the expense of botox, please try an Rx of NEURONTIN (gabapentin). Miracle drug for me, I have taken it about 11 years.
LaNell
LNB8660@comcast.net
I have an 11 year history of cervical dystonia. Luckily I finally found out what I had from a newspaper article about a nun that had it. Then what type of subspecialist to go to, and the best Neurologist in his specialty in the world. Dr. George Paulson at Ohio State University.
Before you resort to the expense of botox, please try an Rx of Neurontin (gabapentin).
LaNell
LNB8660@comcast.net
I've heard good things about Neurotonin, but I'm not sure if I can get it from my doctor.
My Dystonia is work-related (repetitive-motion injury), so I have to go through Workers Comp for treatment. They said that, although Botox is the standard treatment, it's experimental, so I can't get it from a neurologist. They sent me to a pain management specialist because using Botox for pain management is an accepted treatment for pain.
I would rather go to a neurologist, but it can't be done through Workers Comp (not yet anyway), but I'll ask my doctor about Neurotonin.
Lucky for me, my treatment is 100% covered by Workers Comp for as long as I keep my job. Hopefully my doctor will want to try it, can prescribe it, and the insurance company will agree to pay for it!
I have been using Botox for 7 years and have never heard of Neurontin. Can you tell me more about it?--Jillie
I have cd and been using Botox for 7 years and have never heard of Neurontin. I am going to look in to it.Do you know how it works?--Jillie
Neurontin/gabapentin should have been tried a very long time ago. Never let your doctors play God with you...if they hesitate to prescribe it, go to another doctor. Most doctors would keep you on the injections of Botox, since that's much more expensive. Research it. Neurontin is relatively harmless stuff! The only side affect I ever heard a complaint about (of the many I know that have successfully used it for a dozen ailments) was that it caused sleepiness. My system was not used to anything stronger than an aspirin (bear in mind I don't even drink alcohol) and I have taken 1,500-1,800 mg daily for about 12 years now. Keep in mind, I am nearly 5'8" and weigh only 125 tops. As far as the progression of dystonia, it almost always hits it's peak 2-5 years after it's onset. Luckily for me, I was fine before the first 2 was up. Oh, Neurontin is not expensive...at least not NOW. You don't have to be a member of Costco to get your Rx of it there (I haven no insurance, and pay for it on my own).
LaNell thanks for the info I am going to the Dr.today. I also did not know what I had for years.You are only the second person I ever talked to who also has cd.I live in NJ and was told what it was at at Robert Wood.I just left work last year I was a school bus driver and am doing a little better.
JIllie
Contact me at Jillie258@gmail.com
Post a Comment
<< Home