Dystonia Diary

This is what it's like to have cervical dystonia - the good, the bad, and the ugly. Actually, there's nothing good about it.

Friday, September 22, 2006

More drugs

At my last Dr appointment on the 20th (a follow-up), he increased my Baclofen to 30mg a night (up from 20mg), because I was having trouble falling asleep, in addition to staying asleep. That night I thought I forgot to take the 18mg of Zanaflex. The next night I just took 6mg. I woke up about 4 1/2 hours later (a big improvement), and since I didn't have any vivid dreams, I took the other 12mg. Much to my surprise, I didn't experience the "drugged-out groggy" feeling that I had the last time I took 30mg of Baclofen, or the "lazy, apathetic" feeling from the Zanflex! Tonight, I'll take 12mg, then the next 6mg when I wake up.

My reason for doing that tonight (instead of taking all 18mg at once) is because 18mg of Zanaflex makes me really tired. I have to work tomorrow evening, and I don't want to risk being too tired or "druggy" at work. I also work Sunday evening, so I'll do the same, and take everything as prescribed Sunday night.

Pain-wise, I'm doing really good. I still can't turn my head to the left when I'm moving around, but I can hold it a lot straighter now, and the pain is greatly reduced. I just have minor pain and a little stiffness on the left side of my neck, and around my neck at the top of my shoulders. I can live with that.

3 Comments:

At 1:22 PM, Blogger celtic_mist said...

Maybe I missed something :-) but for the sleep problem is the first option not a regular sleeping tablet.
I was taking 4X10mg of baclofen daily for a while. I didn't have any noticeable side effects but it didn't help my dyst.
Although we are all different I was thinking that combinations of meds can have unpredictable side effects.
Hope you are winning the sleep battle because good restorative sleep is so important.

 
At 10:14 PM, Blogger I go by many names... said...

Unfortunately, sleeping pills aren't an option for me. I would have to take them every night, and they're only meant for occasional use. I do sleep a little better with the Baclofen and Zanaflex, but not much better. My neck feels better with the extra Baclofen though, so it's not all bad.

 
At 6:43 AM, Blogger celtic_mist said...

I would tend to agree with you about sleeping pills. I usually sleep okay but if can't I would take some of my meds: clonazepam or neurontin, which I normally take during the day: (3 X 0.5mg and 3 X 300mg). 0.5mg of clonazepam can work wonders :-)

 

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