Dystonia Diary

This is what it's like to have cervical dystonia - the good, the bad, and the ugly. Actually, there's nothing good about it.

Monday, August 21, 2006

Info from my other blog from 2005

Continued from my previous post...

1/9/05
More Workers Comp Leave, and still waiting for approval for a neurological second opinion and more physical therapy. I'm still in so much pain I can hardly stand it.

1/16/05
Finally got approval for neuro 2nd opinion, and maybe more physical therapy in Spring!

1/19/05
Been having "tingly feet", so I called Dr to report it. Nothing can be done since it's not related to my Torticollis, but I though the neuro may want to know.
The Tennessee branch of ins co will talk to me, while the local branch won't. And more Workers Comp leave.

Feb 05
Neuro appointment. A waste of time.

3/18/05
Neuro test appointment. Another waste of time.

5/5/05
Confirmed appointment with Pain Management specialist Dr, who knows how to treat dystonia! Workers Comp leave continues.

5/6/05
Saw above Dr.

5/17/05
First Botox shots

5/25/05
More phys therapy.

5/31/05
More Botox.

6/14/05
More Botox.

6/15/05
Last phys therapy. Didn't help much.

6/28/05
More Botox.

7/4/05
Finally back to work!

7/19/05
Last Botox shots. 35 total.

9/28/05
My condition was declared "permanent and stationary" by Ortho Dr, and I was released to Pain Manacement Dr for further treatment. He also gave me a "permanent restriction - no cashiering". If I operate a cash register, the repetitive motion involved in looking at the register, then the merchandise, then the bagging area, all makes my dystonia worse. It also prevents me from getting a good paying job in retail. Oh well.

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