Dystonia Diary

This is what it's like to have cervical dystonia - the good, the bad, and the ugly. Actually, there's nothing good about it.

Friday, December 28, 2007

Strange new problem mostly gone!

My problem with putting my left arm in the sleeve of my jacket has almost completely cleared up! It may have been just a combination of worsening Dystonia and insomnia, plus job stress.

Speaking of insomnia, I've been drinking Chamomile tea at night, right before bedtime. If I drink it quickly while it's still hot, I sleep a lot better but I wake up groggy, and with a mild headache. I tried taking one less Zanaflex at bedtime to see what happened, but I slept a lot worse. Now I'll try taking one less Baclofen at night to see what happens. I may get lucky.

The deviation has gotten a lot worse. My head is turned right, pulled forward, and tilted up, and my left shoulder is hunched up if I completely relax and let everything just happen - or if I'm working. It's making work a little more difficult, but I can still manage. The pain is a little worse, but still tolerable. So far. By my next follow-up (mid-January), my Dr will probably ask for more Botox - and I'll probably be ready for it.

Monday, December 24, 2007

Strange new problem

*I posted this on Dec 21 elsewhere*

I've always put on coats with my right arm first. About a month ago, I noticed an occasional problem with finding my left sleeve to put my arm in it. I never gave it much thought. For all I know, it could have been happening for a couple of months, but since it happened so rarely, I hardly noticed it.

A few days ago, I really noticed that I have that problem most of the time. I now have a lot of trouble getting my left arm into a coat sleeve more often than before. Since my Cervical Dystonia causes my head to rurn right, pull forward, and tilt up - and cause my left shoulder to hunch up - I'm wondering if my "sleeve problem" is Dystonia related. I'll ask my Dr at my next follow-up in mid January.

That's all I need - another Dystonia compication! At first, my head just turned to the right. Now it turns, pulls and tilts, and my shoulder hunches. Sheesh! The fun never ends.

As I like to say, Cervical Dystonia may be a pain in the neck, but at least it isn't boring.