Dystonia Diary

This is what it's like to have cervical dystonia - the good, the bad, and the ugly. Actually, there's nothing good about it.

Monday, April 03, 2006

Not half bad

Before I get to the relatively good news, I have to gripe about this...

Recently, my Dr told me to take one extra pill of both my meds. I was assured that there would be no problem with refilling them early (since I'll run out earlier than before). Well, there was a problem. The insurance company wasn't going to authorise the early refill, since they weren't informed about the change in dose. I had to make a call to the Dr, and a couple of calls to the pharmacy, and after about 3 hours the Dr's receptionist got things straightened out.

So now I have both my meds. Too bad the tizanidine isn't doing much good. I fall asleep faster, but I still can't get any uninterrupted sleep. The extra Baclofen is helping a little, though. The spasms aren't quite as tight, I have more flexibillity, and I'm no more drowzy than usual.

Speaking of drowzy, this lack of sleep is really messing up my focus and concentration, and that is messing up my memory. Hopefully my Dr will have some advice for how I can get some uninterupted sleep. At least 5 hours would be nice.

I still haven't heard if I'll get more Botox. The insurance company didn't waste any time raising a stink about my early refills, but it's in no hurry to let me have the only treatment that really works. Maybe my Dr will let me take more Baclofen. It's realatively cheap, so the insurance company shouldn't have a problem letting me have as much as I need.

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